Tuesday, April 29, 2008

Princess Riley Bear

Please meet
Princess Riley Bear!

NTSAD Conference in Florida 3/08-4/08

Riley Nicole Luce was born Friday, September 27, 2002 at 7:04 p.m. at the Community Health Center of Branch County in Coldwater, Michigan.


Riley lives with Sandoff Disease!

Sandoff Disease is a near twin to Tay-Sachs Disease.
You can find more info on this horrible disease HERE!
Click on The Diseases on the tool bar.
Then scroll down & click Tay-Sachs/Sandoff.
Then scroll down & click What is Sandoff.



Princess Riley Bear lives with her mommy & daddy,
Nicki & Dave Luce in Michigan.



Here is a picture of Riley on her first Easter, 2003
@ 6-7 months old.

Easter 2008
Princess Riley Bear turned 5 back this past September.
This is a miracle for her family
because the doctors told them that she
probably wouldn't live past the age of 3!!

Please visit Princess Riley Bear and her family
and sends them some warm greetings:
http://www.caringbridge.org/visit/princessrileybear




And remember, live each day to its fullest as we are not always guaranteed tomorrow!

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