Another ^ANGEL^ earns Her ^WINGS^....

At 1:25 this morning,
Carmen Alesandra Coddington took her last breath.
She left this earth peacefully with her daddy by her side and flew straight into the arms of her Heavenly Father.



Please take a moment and say a prayer for her and her family;
mom & dad Lana and Dave, big sister Lauren and baby sister Hope.

Carmen was a 4 year old afflicted with Tay Sachs, AB Variant.

^j^^i^^j^^i^^j^^i^^j^^i^^j^

Check this out!

Bless yo sweet
^CARMEN^

You are
HOME
with
the
LORD

♥♥♥♥♥

^JUST ^j^ BELIEVE^

Please Pray For Molly Grace!!

Molly has been in the hospital

due to fluid in her lungs.

While the fluid has cleared up,

her lung is now partially collapsed.

There really isn't anything they can do for it, for her.

Molly was released today and taken home.

Her final diagnosis is atelectasis,

which means her lungs are not fully inflated.

She is at the end stages of

Tay Sachs

with declining pulminary function.

The doctor told the family she could be here

for months. It depends on how hard

Miss Molly wants to fight.

Molly has had these health issues before,

but she wasn't as advanced in the disease as she is now,

so it's just getting harder and harder for her

little body to fight it.

Please pray that she will be comfortable,

as well as, for her family when the

time comes for her to

earn her wings.

You can send Molly Grace some well wishes Here!!

For more information on Tay Sachs Disease

please visit these sites:

Cure Tay Sachs Foundation

NTSAD

^JUST ^j^ BELIEVE^

A TS Princess Turns 6!!

Happy 6th Birthday

Big Elise!!

You are an inspiration to us all!!

Elise reached a big milestone last year when she turned 5.

Most children with Tay-Sachs don't live to see their 5th birthday.

So her family and friends felt happy and blessed to help her celebrate that day!!

Please join me, her family and friends in celebrating

an even more huge milestone

as this precious gem

celebrates her

6th birthday

today!!

Send her some birthday wishes HERE!

^JUST ^j^ BELIEVE^

Good Great Things Come In Small Packages aka An ^ANGEL^'s New Baby Brother

Brian, Sherri, Dylan & Brady welcome Devin to their family!

Devin Robert Manning

Born: Jan 28, 2009

At 9:37 pm

5 lbs 7.4 oz

18 ½ inches

Here is an e-mail I received from the Mannings:

Well, I am writing to you all with overflowing tears of joy!
As you may have heard already, we welcomed Devin Robert Manning into our family on Wednesday, January 28, 2009. He arrived at 9:37 pm a mere 5 pounds 7.4 ounces and 18.5 inches long. He is just perfect with spiked brown hair like his big brother D and the sweetest wrinkly forehead just right for kisses!

After weeks of bedrest and a pregnancy full of ups and downs, the doctors admitted me due to the snow storm last week and our distance from the hospital. As soon as the snow cleared, I thought for sure we would be coming home without a baby waiting for the next false alarm. Instead, God had other plans and we are happy to have him in our lives! He is just cute as a button and already a week old today! Where does the time go? Nanny came to the hospital on her snow day to give me a ride home while daddy was at work, but instead she arrived in time to jog the halls of the maternity ward with me:) She was there to capture all of the memories and it didn't take long once daddy arrived!

When people asked Brady what his baby's name was going to be, he said, "God and Dylan have to name my baby". What a large task it is to find a name given by God and D. We narrowed down a list of boys names and on Christmas morning, we decided on Devin, which means DIVINE (God) and rhymes with HEAVEN which is where his big brother will be watching over him from above. We thought it was perfect! His middle name is for Brian's father Robert who passed away suddenly at the age of 50 and never had the opportunity to meet his grandchildren. He would be very proud!

Brady is an extremely excited big brother! He calls Devin "My Baby"! On his way to the hospital to visit him for the first time, he told Nana and Pop-um that he has waited a LONG time for his baby to kick out of mommy! When Nanny called him, he said, "Nanny, I have my baby now!" Brady was always so upset when everyone had a baby brother except for him. Benjamin had his little Matthew and Kenny had his little Andrew and he needed a baby too. Devin is so tiny that his preemie diapers are floating on him, soon enough we will wonder if he was really THAT small! Brady was even tinier at 4 pounds 15 oz. Nanny told Brady that she had a special prize for him for being such a nice big brother and he said, "Well, Nanny I already have my prize, it's my brother!" He gives us so many priceless moments it is tough to capture them all.

Thank you all for your many phone calls and congratulatory emails! It is tough to respond to them when all we want to do is cuddle with our little angel. We have been getting visitors and it is quite alright if you'd like to stop in to meet him. We've always welcomed people into our lives with open arms as we share our most precious gifts with those who care! Oh, and guess who has been sending us Pennies from Heaven at the most perfect times? We are blessed to have an angel to watch over us.

A very SPECIAL thank you to the Cure Tay-Sachs Foundation who made an extremely generous donation to Tay-Sachs Research the day Devin was born! We are also elated that CTSF were able to contribute to little Camilla in Colombia to assist with her medical needs and urgent care, THANK YOU, THANK YOU for your sincere kindness!!!

So as we end this long overdue note and announcement of joy, we JUST BELIEVE in miracles as we gaze into Devin and Brady's innocent eyes! Also, check out the shutterfly website we've set up to introduce Devin http://justbelieve.shutterfly.com/


Love to all,
Sherri, Brian, ^Dylan^, Brady and Devin
XOXOXOXO



**Check out some cute family photos

at the above link!!

^JUST ^j^ BELIEVE^

Tay Sachs Birthdays

Happy 4th Birthday

in Heaven

Angel ^Conner^

Happy 3rd Birthday

Princess Krystie!

^JUST ^j^ BELIEVE^

Light A Candle

WORLD WIDE CANDLE LIGHTING CEREMONY
Sunday December 14th is the Compassionate Friends World Wide Candle Lighting Ceremony.

At 7pm (local time) please light a candle in honor of your loved one

and all the NTSAD Angels gone too soon.

Whether this is your first holiday season without your loved one

or 35th it is hard to celebrate when the ones we love the most are not with us.

May the simple act of lighting a remembrance candle bring you solace and peace,

and may you always feel your loved one close to your heart.

Visit the Compassionate Friends website at www.compassionatefriends.org to learn of community candle lighting ceremonies in your area. Or host a small gathering of friends and family in your home.

Suggestions for your at home Candle Lighting Ceremony
Ask friends and family to share their favorite memory of your loved one
Read a poem special to your family or select from past Commemoration readings attached
Display a few of your loved one’s favorite things

If ever there is tomorrow when we're not together. There is something you must always remember. You are braver than you believe, stronger than you seem, and smarter than you think. But the most important thing is, even if we're apart... I'll always be with you.
-- Winnie the Pooh

^JUST ^j^ BELIEVE^

Birthday Wishes To A Tay Sachs Cutie!!

Please join me in wishing

'Baby Elise' Rochman

a Happy Birthday!!

This beautiful little darling

turned 4

yesterday 12/1!!

Here she is w/her mommy

at the Butterfly House

on Sunday 11/30!!

I would also like to wish Elise's baby sister, Eden

a Happy 2nd Birthday,

which was on Friday, 11/28!!

HAPPY BIRTHDAY GIRLS!!!!

You can send your best wishes to the girls HERE!

^JUST ^j^ BELIEVE^

Tay Sachs Reminders and Breaking News!

Just a reminder:

News from CURE TAY-SACHS FOUNDATION

NOVEMBER

is

TAY-SACHS AWARENESS MONTH

IN

Pennsylvania!

As well as in Oregon!

*********************************************

BREAKING NEWS:

Massachusetts

DECLARES

NOVEMBER

TAY-SACHS AWARENESS MONTH!!!

******************************************

President Bush offers his greeting and appreciation for our efforts!

------------------------------------------------------------------------------------------

Some other news from NTSAD

Topic of the Week: SAVE GAS! SAVE TIME! RAISE MONEY for NTSAD!

With over 700 stores in the iGive Mall and access to hundreds of exclusive coupons, free shipping deals, and sales, iGive is the smart way to shop. You'll find everything from daily necessities to special occasion and holiday gifts, at stores you know and love. So save a trip to the mall, and avoid the long lines. You'll never pay more when you reach a store through iGive, and up to 26% of each purchase benefits NTSAD!
Start iGiving at: www.iGive.com/NTSAD.
Just a few of iGive’s 700+ online stores where aportion of each purchase benefits NTSAD:
eBay
Best Buy
Land’s End
Staples
Nordstrom
Barnes & Nobel
800-Flowers
Pottery Barn
Apple Store

You can do some holiday shopping while also helping a great cause!!

------------------------------------------------------------------------------------

To see all this information and more please visit:

http://www.ntsad.org/

http://www.curetay-sachs.org/

^JUST ^j^ BELIEVE^

Another ^ANGEL^ In Heaven

Please pray for the Cairns Family!!

Here is the post from Isaiah's CB site:

THURSDAY, NOVEMBER 20, 2008 09:46 PM, CST (10:46 PM-our time)
Little Isaiah earned his wings tonight Thursday, November 20th 2008 at 9:23 pm in the loving arms of his daddy, mommy, and brother. We are all so heart broken but know Isaiah is in the loving arms of Jesus and his family and friends that have already past before. Updates to follow soon.
In Christ
Grandpa Cairns

Please join me in prayer for the Cairns Family!
You can send your best wishes HERE!

For more information about Tay Sachs Disease [and other related diseases] please visit:



http://www.curetay-sachs.org/

or

http://www.ntsad.org/







^JUST ^j^ BELIEVE^

A Prayer Request!!

PLEASE PRAY!!!

For

Isaiah Cairns
Isaiah was diagnosed with Tay-Sachs disease

in January of 2008.

He is now 20 months old.

At this point, he isn't doing good.

He hasn't been eating well

but is resting comfortably with his family.

Isaiah lives in Missouri with his

mommy Mary and his daddy Matt,

along with his brother Ethan.

Please pray for Isaiah and his family!!

You can visit Isaiah HERE

and leave them an encouraging message!

^JUST ^j^ BELIEVE^

Introducing- ^DYLAN^'s Daily-sort of!!

I was just trying to clean out my OLD e-mails which brought me to have an idea.

Right after ^DYLAN^ received his ^wings^, his daddy--Brian-- decided to send out a regular e-mail (to anyone who wanted to be added to that mailing list) titled 'Dylan's Daily'. These e-mails contained an inspirational quote along with a picture of ^DYLAN^. Well, I saved all of these e-mails in hopes to use them one day. So, I've decided to use them here. I will post one of the sayings--in the order I received them-- although, they won't be daily, but maybe weekly--we'll see. Anyway I hope you enjoy the quotes and find them inspirational, as well!

Introducing:

^DYLAN^'s Daily

Received: Thursday, November 02, 2006

"Today is the best day of your life

Because it is the day that you have not seen."

^JUST ^j^ BELIEVE^

At Least Capitol Hill Got One Thing Right!!!

I received this post card in the mail yesterday:

Just looking at sweet Dakota's eyes looking up at me

makes me want to help find a cure for this

terrible disease!!

No child should have to suffer like these children do!!

So, in light of

'National Tay Sachs Awareness Month'

I urge you to help get the word out:

-Take a momebt to share this news with your friends & families!

-Create a post on your blog!

-Send out an e-mail!

Please:DO WHAT YOU CAN!!

Please--if you can--DONATE to the CAUSE!!

Every little bit helps--even a small amount!!

Thank you!!

^JUST ^j^ BELIEVE^

On The Wings Of Angels

Another

^ANGEL^

receives

her

^WINGS^

A post from her website:
WEDNESDAY, SEPTEMBER 03, 2008 08:39 PM, CDT
6:24 p.m. on wednesday September 3, 2008
Lilie Elisabeth Clark earned her wings to heaven.
She was peaceful and with her mommy and daddy by her side as she took her last breath.
Please don't cry for her, as she is now free.

She did the struggling for 22months, and now it is our turn to take the wheel.
We love you always and forever sweet peanut.

Lilie suffered from GM1 Gangliosidosis which is an allied disease to Tay Sachs.

You can visit Lilie's website HERE!

It's All About Me!!

Here are a little facts

about me:

My eyes are greenish-blue.

Sometimes they look more blue.

And sometimes they look more green; especially when I cry!

I was born on January 18th,

which would make me

a

I wear these everyday!

Have since November 25, 2006.

The day I purchased them and put them on at

^DYLAN^'s

5th Birthday Celebration

**Tay Sachs took him 3 months & 23 days earlier!**
JUSTBELIEVE